Summit Social Media Roundup

Thanks to all those who helped share the discussion at the Summit! Here’s a perspective of the two days from some of the participants:

View the story "2013 National Summit on Advanced Illness Care" on Storify2013 National Summit on Advanced Illness CareFor two days clinical leaders, a bipartisan team of Senators, major employers, thought leaders, communication experts, financial planners and interfaith community leaders came together to build a common sense of purpose and direction to transform advanced illness care.Storified by C-TAC· Tue, Feb 05 2013 18:01:35 Day One: January 29, 2012 – Framing theChallenges

9:00AM-9:30AM Welcome & Keynote Address

Welcoming Remarks

Bill Novelli and Tom Koutsoumpas, Co-Chairs, C-TAC

Keynote Speaker

Judith A. Salerno, M.D., M.S., Institute of Medicine

The NAS AuditoriumCTACorg Bill Novelli and Tom Koutsoumpas, Co-Chairs, Coalition to Transform Advanced Care call the tribe of advanced care to order. #CTAC2013Dave Foster #CTAC2013 Summit is starting! Bill Novelli: we are here for loved ones who may not have gotten the care they deserved. via @KnowYourWishesRTI_Innovation Dr. Judy Salerno presenting keynote address: #CTAC2013Jennifer Marsh Judy Salerno of @theIOM at #CTAC2013 re: advanced illness – "Stories tell us that people can change." and, channeling BO, "We must act."RTI_Innovation Judith Salerno: Americans with advanced illness will receive comprehensive, high quality, person & family centered care. Join us #Ctac2013Lauren Jodi Van Scoy I agree with Judy that personal stories inform and engage and are essential to transforming #advancedcare What’s the best way? #CTAC2013Dave Foster Panel: Care Journey: Personal Reflections on Advanced Care going on now in the auditorium! #CTAC2013C-TAC

9:30AM-11:30AM Care Journey:Personal Reflections on Advanced Care

Moderators

Richard Address, Congregation M’KorShalom

Tyrone Pitts, Progressive NationalBaptist Convention

Panelists

Amanda Bennett, Bloomberg News

Nancy Brown, American Heart Association

Suzanne Mintz, Caregiver Action Network

SusanReinhard, AARP
Don Schumacher, National Hospice and PalliativeCare Organization (NHPCO)

Closing Remarks

Brad Stuart, M.D., Sutter Care at Home

Three Powerful Storiesctacorg A Biker’s Heartctacorg So honored and touched to watch A Biker’s Heart run on the big screen. To view the video, visit http://www.knowyourwishes.com. #Ctac2013Lauren Jodi Van Scoy RT @rfberry: "1/3 of hospice patients died within 7 days." Don Schumacher CEO @NHPCO_News #CTAC2013 Re: Waiting too long to refer to #hospiceMichelle Martini RT @JenMarsh2: RT @Altarum: Don Schumacher on the measure of quality: “Imagine what want for yourself, and then seek to have that for everyone.” #CTAC2013renée berry RT @hwinsider: Suzanne Mintz, "Mental illness caregivers have a much harder time, 1/3 of #familycaregivers care for more than 1" #CTAC2013CAN Nancy brown stresses impt of advanced planning in pts w/ heart failure, but this disease is esp lacking in advanced planning.Agree #Ctac2013Lauren Jodi Van Scoy Susan Reinhard says that the RNs she was training were not psyched to go in and teach families in home. Not part of training. #CTAC2013Dave Foster "We need a hospice philosophy for all advance illness care where the whole family is part of the care unit." S Reinhard @AARP #CTAC2013 #hpmrenée berry "Even in transitional care, there is still meager attention given for the family caregiver." Susan Reinhard, SVP @AARP #CTAC2013renée berry Broader community, too! Reinhard @AARP "We need adv illness care where the whole family is part of the care unit." #CTAC2013 @agesinstituteRTI_Innovation "Your effectiveness as professionals will be diminished if you don’t support carevigers." Susan Reinhard, SVP @AARP #CTAC2013renée berry "It is vital that the family caregiver be a part of the health care team at all stages" @AARPpolicy Susan Reinhard #CTAC2013Rita Choula Amanda Bennett at #CTAC2013 "Denial is nowhere near strong enough a word for what we are experiencing." #advancedillnessRTI_Innovation After hearing Amanda Bennett speak, I simply must read her book! Amazing story and research went into this work!!! #Ctac2013Lauren Jodi Van Scoy Rev Tyrone Pitts reminds us we are "inextricably interrelated," urges us to create a movement to transform advanced illness care #CTAC2013RTI_Innovation #CTAC2013 what are we doing in national policy to address these issues? How can we talk about re-admissions without talking about hospice?Regina Holliday RT @CTACorg @NHDD at #CTAC2013: inefficiencies are a huge driver of cost.Christian Sinclair Closing RemarksBrad Stuart, M.D., Sutter Care at Home

Good luck, Dr. Stuart! RT @rfberry: Next session with a story from @BradHStuart @SutterHealth #CTAC2013 (Excited #FantasticSpeaker )Sutter Health Brad Stuart @SutterHealth: Modern medicine measures quality w/out tending to spirituality/the sense of trust essential to healing #CTAC2013Altarum Institute "The healthcare I was trained to provide was no longer caring" @BradH Stuart #CTAC2013Jennifer Marsh Basic human need for love and trust has a strong link to spirituality. Need to infuse into health care, especially at EOL. Stuart #CTAC2013Patricia Bomba M.D. Looking forward to hearing @dnmendelson & colleagues discuss costs/benefits of transforming advanced care: http://ow.ly/hejYi #CTAC2013Avalere Health

11:45AM-1:00PM Assessing the Benefits & Costs ofTransforming Care

Moderator

Mark McClellan, Brookings Institution

Panelists

Jeff Burnich, M.D., Sutter MedicalNetwork

Gail Hunt, National Alliance forCaregiving

Randall S. Krakauer, M.D., Aetna

Diane E. Meier, M.D., Center to Advance Palliative Care

Dan Mendelson, Avalere Health

Panel at #CTAC2013. Assessing the Benefits and Costs of Transforming Care http://pic.twitter.com/pgXylJEYC-TAC Jeff Burnich w fascinating data about ways to lower costs, ICU days with advanced illness management. Eager to read the data! #Ctac2013Lauren Jodi Van Scoy Yes! I wish there were slides “@KnowYourWishes: Jeff Burnich data about ways to lower costs, … Eager to read the data! #Ctac2013”Dave Foster Randy Krakauer: Those in this room and else here have reinstated that there is a tremendous opportunity for impact. #CTAC2013C-TAC Randy Krakauer on his Compassionate Care program @Aetna: There are still no beneficiary or family complaints (1/2) #CTAC2013Altarum Institute "We decided (with this chronic illness management program) we are going to impact & define quality" Randy Krakauer @Aetna #CTAC2013renée berry "If this had been a drug that showed 80% improvement as a key outcome, it would be a standard of care." Randy Krakauer @Aetna #CTAC2013renée berry .@dnmendelson: We are in a world where evidence has become exceedingly important. So how do you develop compelling evidence? #CTAC2013Avalere Health "If you’re looking for the motherload of impact on both cost & improving quality, this is it." Randy Krakauer @Aetna #CTAC2013 #hpmrenée berry @rfberry @avalerehealth @HWinsider @KnowYourWishes @Altarum Thanks so much for sharing! #ctac2013 #compassionatecareAetna “Using Patient Flow Data to Manage Risk, Enhance Patient Outcomes, and Improve Financial Performance” – @dnmendelson’s talk #CTAC2013Altarum Institute "Make a case for dignity driven decision making, there is ample data. Motivate w/a quality imperative" @dnmendelson @avalerehealth #CTAC2013renée berry Diane Meier of @CAPCpalliative: “Adding a covered benefit does not always, or even often, yield savings in some other area.” #CTAC2013Altarum Institute We need to stop saying end of life care when talking about patients with chronic serious illness. Diane Meier was terrific at #CTAC2013 #hpmDana Lustbader MD

1:45PM-2:00PM Remarks

Speaker

Jeff Thompson, Gundersen Health System

Jeff Thompson, MD, CEO of Gundersen Health System spoke at #CTAC2013 on Advanced Illness Care. Dr. Thompson said…http://bit.ly/VslGlFGundersen Lutheran RT @rfberry: “A fundamental question is do we want to have a say in how we live?" Jeff Thompson, MD CEO @GundersenLuth http://goo.gl/mOZTL #CTAC2013Jack Tatar “A fundamental question is do we want to have a say in how we live?" Jeff Thompson, MD CEO @GundersenLuth http://goo.gl/mOZTL #CTAC2013renée berry

2:00PM-3:00PM The Washington Context: PolicyOpportunities to Improve Advanced Illness Care

Moderator

Bruce Chernof, The SCAN Foundation

Panelists

HannsKuttner, TheHudson Institute

Chris Jennings, Jennings Policy Strategies

SenatorBlanche Lincoln (D-AR), Alston & Bird

LenNichols, GeorgeMason University

Panel: "The Washington Context: Policy Opportunities to Improve Advanced Illness Care" with Sen. Lincoln, @LenMNichols http://pic.twitter.com/lkZtB5tfC-TAC The distance between policy elites and the people creates an opportunity for policy entrepreneurs Hanns Kuttner #CTAC2013C-TAC @CTACorg Sen Blanche Lincoln (D-Ark) speaks on The Washington policy opportunity for Advanced care & hospice care for her motherStephen Connor RT @Kathy_Brandt: @CTACorg Sen Blanche Lincoln-we need to make sure people do know what is available. We need to help people plan for end of life #hpmEngage With Grace Senator Lincoln at #CTAC2013 We have to take the issue to where we live.C-TAC @CTACorg Len Nichols "what docs do is save us, until they can’t" we can increase expectations that there is more they can do #hospiceKathy Brandt

3:00-4:15PM Perspectives from the U.S. Senate: Achieving High-Quality AdvancedIllness Care for Our Seniors
Moderator

Susan Dentzer, Health Affairs

PanelistsU.S. Senator Johnny Isakson (R-GA)

U.S. Senator MarkWarner (D-VA)

U.S.Senator Sheldon Whitehouse (D-RI)

@CTACorg Susan Dentzer asks, if faith community invited congress to EOL forum, would Congressmen come? #hpmKathy Brandt @CTACorg Sen Mark Warner, "you have to involve the faith community in the drive for advanced care"Stephen Connor We share the message but no one listens. RT @CTACorg: Chris Jennings @ #CTAC2013 better care is the cake and cost savings is the icing.Scott Brown Three senators currently on the CTAC panel: Sen. Isakson R-GA, Sen. Warner D-VA, Sen. Whitehouse D-RI #Ctac2013Lauren Jodi Van Scoy @CTACorg Sen Whitehouse Ctac membership is the cover we need to get this issue moved. #hpmKathy Brandt Sen. Warner said time is ripe for action; working on advanced care bill now #CTAC2013CritCareRoundtable Senator Isakson: you (@CTACorg) need to create a brand so that everyone (public) knows the same terms, what we are talking about. #Ctac2013Lauren Jodi Van Scoy Sen. Isakson says education is the first step in changing the discussion on advanced care #CTAC2013.CritCareRoundtable RT @hospice_mktg: Wise words! RT @Kathy_Brandt: @CTACorg Sen Warner build champions who were touched by #hospice/other orgs & get stories into media #CTAC20136th Annual NHDD Sen. Warner, #CTAC2013 on care plans:You will find a much more open discussion now than you would even two years ago.MediCaring

4:15PM-4:30PM Closing Remarks

Speaker

Leonard D. Schaeffer, University ofSouthern California

4:30PM-6:30PM Reception

Great Hall

Goodnight #CTAC2013! See you tomorrow. Get excited for Kathy Greenlee, Jennie Chin Hansen & the rest of our lineup! http://pic.twitter.com/UQWilfxrC-TAC

Day Two: January 30, 2012 –Presenting Solutions and Developing an Action Plan

8:30AM-9:00AM Keynote Address
Speaker

Kathy Greenlee, Assistant Secretary for Aging, U.S. Department ofHealth & Human Services

Kathy Greenlee at #CTAC2013 – There is more we can do and should do to support families and their caregivers.C-TAC Kathy Greenlee, KeynoteCTACorg Kathy Greenlee of HHS: talking about end of life can be complicated, but it can also be very simple. #Ctac2013 @engagewithgraceEngage With Grace Kathy Greenlee – We need to figure out how to break down barriers to advance illness care #CTAC2013C-TAC Great inspirational speech by Kathy Greenlee regarding working together to transform care. #CTAC2013Jennifer Marsh

9:00AM-10:00AM Panel I: Empowering the Public to MakeInformed Decisions and Plans

Moderator

Alexandra Drane, Eliza Corporation

Opening SpeakerKent Wilson,Honoring Choices Minnesota

Panelists

Amy Berman, The John A. HartfordFoundation

PegChemberlin,National Council of Churches

HarveyFreishtat,Institute for Healthcare Improvement/The Conversation Project

Bill Hanley, Twin Cities Public Television(TPT)
Lisa Shufro, TEDMED

Empowering the Public PanelCTACorg Inspiring videos from Honoring Choices Minnesota showcase real people, real stories. #dareyounottocry @engagewithgraceEngage With Grace Mario’s Storyctacorg Empowering the Public PanelCTACorg Empowering the Public PanelCTACorg C-TAC offers a safe harbor for those working to improve the (sometimes touchy) topic of advanced care @adrane http://www.thectac.orgEngage With Grace RT @KnowYourWishes: @adrane We need a brand, unified language, emphasizing how you want to live, resources, role of the caregiver… #Ctac2013Jack Tatar Our friend @adrane of @engagewithgrace up on stage for the public empowerment panel.Excited!!! #Ctac2013Lauren Jodi Van Scoy @adrane We need to ride the tidal wave (of this momentum) #Ctac2013Lauren Jodi Van Scoy @CTACorg @adrane we are poised to create a great conversation on advanced illness, EOL. #hpmKathy Brandt RT @HWinsider: I think @adrane just coined a new gang sign for #hpm. "7:20" means we all want to trust being connected in the same time. #CTAC2013Lauren Jodi Van Scoy Empowering the Public PanelCTACorg RT @wonkinakilt: Peg Chamberlin: Fear of "dying from" is a spiritual issue; fear of "living with" is a community issue. #CTAC2013RTI_Innovation @CTACorg @NotesOnNursing 75% of people can’t make some or all decisions at EOL #speak4me http://www.caringinfo.org/speak4me #hpmKathy Brandt Empowering the Public PanelCTACorg MT "@rossswhite: Amy Berman: "Patient is a bad word. I am not a patient; I am a person" #CTAC2013 #bioethics"C-TAC @CTACorg @convoproject looking forward to having Ellen Goodman at #MLC13 http://www.nhpco.org/mlc2013 #hospice #hpmKathy Brandt RT @Kathy_Brandt: @CTACorg Harvey Freishtat @convoproject gap betweens what people want and what they get needs to be filled with conversation #hpmC-TAC Empowering the Public PanelCTACorg

10:00AM-11:00AM Panel II: Working Together:Innovations in Inter-Professional Training

Moderators

David E. Longnecker, M.D., Association of AmericanMedical Colleges
Cynda Rushton, PhD, RN, FAAN, Johns HopkinsUniversity

Panelists

Patricia A. Grady, PhD, RN, FAAN, NationalInstitute of Nursing Research

Bud Hammes, Gundersen Health System

Richard Payne, Duke Institute for Care at theEnd of Life

Bob Wolf, Healthcare Chaplaincy

Panel: "Working Together: Innovations in Inter-Professional Training." #CTAC2013 http://pic.twitter.com/Efykzzi4C-TAC Supporting the Team PanelCTACorg @CTACorg NINR is working on advanced care – EOL is being worked on thru out the government! #hpmKathy Brandt Supporting the Team PanelCTACorg Supporting the Team PanelCTACorg People with advanced illness suffer because our current system is fragmented -Bud Hammes #CTAC2013Jennifer Marsh Supporting the Team PanelCTACorg .Bud Hammes of @gundersenluth patients want a mixture of access to advanced care while keeping all the other services too #CTAC2013Dave Foster @CTACorg Rich Payne we have to practice the God Father principle-try to see the world as other people see the world #hpmKathy Brandt Supporting the Team PanelCTACorg @CTACorg Rich Payne people want docs to offer them choices but more than 50% want doctor to make the healthcare decisions #hpmKathy Brandt Supporting the Team PanelCTACorg Curious to hear how Wolf thinks chaplaincy care should deal with the "nones," especially those entirely without faith. We die too! #CTAC2013Joe Colucci

11:15AM-12:15PM Panel III: Identifying and Replicating BestPractices in Clinical and CommunityModels

Moderator

Tom Smith, Johns Hopkins University

Panelists

Eric Anderson, Allina Health System

Bill Borne,Amedisys

Malene Davis, Hospice Innovations Group

Dan Johnson,Kaiser Permanente

Panel: "Identifying and Replicating Best Practices in Clinical and Community Models" #CTAC2013 http://pic.twitter.com/2ezbm1ErC-TAC Clinical Models panel talks #barriers and #opportunities to increase quality of care #CTAC2013C-TAC Clinical and Community Models PanelCTACorg @CTACorg learning about Alina Heath’s LifeCourse care guide model. #hpmKathy Brandt @CTACorg Dan Johnson invest in training, imbed speciality support into high risk services #hpmKathy Brandt Clinical and Community Models PanelCTACorg @CTACorg Bill Borne the incentive to change is the incentive. Incentive needs to be the proper reimbursement. Away from fee for serviceKathy Brandt Clinical and Community Models PanelCTACorg @CTACorg Malene Davis presents Innovations Group and says community should demand hospice done rightStephen Connor @CTACorg Malene Davis 8 key metrics-what matters most. Collect and share data with staff. #hpmKathy Brandt Clinical and Community Models PanelCTACorg @CTACorg Tom Smith wants performance feedback from hospice providers, how am I doing on things like LOSStephen Connor Clinical and Community Models PanelCTACorg

12:15PM-1:15PM Panel IV: Empowering Employers asPart of the Solution

Auditorium

ModeratorBrent Pawlecki, The Goodyear Tire and Rubber Company

Panelists

Ann Richardson Berkey, McKesson Corp.
Kathy Brandt, National Hospice and Palliative Care Organization (NHPCO)
Pam Kalen, National Business Group on Health
Neil Trautwein,National Retail Federation

Jack Watters, Pfizer

Panel: Empowering Employers as Part of the Solution #CTAC2013 http://pic.twitter.com/OtJi1PS9C-TAC Brent Pawlecki of the @CTACorg Employer Comm. How does this issue affect you and the employees around you? #CTAC2013 http://pic.twitter.com/RIBrO17cC-TAC Brent Pawlecki from @Goodyear talking about why employers need to care about advanced illness programs #CTAC2013Jennifer Marsh Empowering Employers PanelCTACorg I wish more employers thought like Pawlecki does and incorporate aging, caregiving, eol and grief into wellness programs #CTAC2013Jennifer Marsh Pawlecki: Grief is an employer issue, too. Makes sense to provide end-of-life resources to keep employees prepared & supported. #CTAC2013Joe Colucci Very impressed with the #CTAC2013 presentation by Robert Pawlecki, MD, Chief Health Officer at Goodyear http://goo.gl/UlF1crenée berry Empowering Employers PanelCTACorg @TrautweinNeil speaking on retailers and the role of large employers in advanced care at #CTAC2013 @NRFnewsC-TAC Empowering Employers PanelCTACorg Jack Watters (Pfizer) encourages all caregivers in the workplace to “come out” – no more shame.Kudos to the ReACT project #TheUnmentionablesEliza Corporation Jack Watters: Caregivers in the workplace need to come out. Can only build support by being visible. #CTAC2013Joe Colucci Jack Watters thank you for sharing your personal story with #CTAC2013! #ArkansasAccent @pfizer_newsC-TAC RT @CTACorg: Presenteeism: Being at work, but not being totally there #CTAC2013Jennifer Marsh Empowering Employers PanelCTACorg @Kathy_Brandt speaking on initiatives to engage consumers on workplace issues. @NHPCO_news Employer Guide. #CTAC2013C-TAC Empowering Employers PanelCTACorg RT @Kathy_Brandt: @CTACorg National Healthcare Decisions Day is April 16 every year http://www.nhdd.org #speak4me #hpm http://www.caringinfo.org/speak4merenée berry Great question about tips for employers initiating advance care planning discussions by Judy Citko, JD #CTAC2013renée berry

1:45PM-3:00PM Concurrent Breakout Sessions

Enjoy your breakout sessions everyone! See you at 3pm in the auditorium to close the day with Jennie Chin Hansen. #CTAC2013C-TAC Jennie Chin Hansen of @AmerGeriatrics summing up a great two days! #CTAC2013 http://pic.twitter.com/YBG6xJdiC-TAC Tom Koutsoumpas and Bill Novello saying thank you to close #CTAC2013 http://pic.twitter.com/q2MlQuhnC-TAC @CTACorg @CarolynMcC @NotesOnNursing @Pallimed @rfberry @JenMarsh2 @adrane finished painting"It is7:20 here"#ctac2013 http://www.flickr.com/photos/45128746@N04/8436580346/in/photostreamRegina Holliday For my #FF, I have to honor @CTACorg for their amazing Nat’l Summit! View the transcript at #CTAC2013Lauren Jodi Van Scoy RT @rfberry: 1,817,699 impressions generated on Twitter for @CTACorg’s 2013 National Summit on Advanced Illness http://goo.gl/ns8Qb #CTAC2013S. Mikan, PhD, RN Honoring Choices MN featured at Nat. Summit on Advance Illness Care Conference http://ow.ly/hrHjcTCMS Minnesota

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