Summit Social Media Roundup

Thanks to all those who helped share the discussion at the Summit!  Here’s a perspective of the two days from some of the participants:

2013 National Summit on Advanced Illness Care

For two days clinical leaders, a bipartisan team of Senators, major employers, thought leaders, communication experts, financial planners and interfaith community leaders came together to build a common sense of purpose and direction to transform advanced illness care.

Storified by C-TAC· Tue, Feb 05 2013 18:01:35

Day One: January 29, 2012 – Framing theChallenges

9:00AM-9:30AM         Welcome & Keynote Address

                                                 

Welcoming Remarks

Bill Novelli and Tom Koutsoumpas, Co-Chairs, C-TAC
                                 
Keynote Speaker

Judith A. Salerno, M.D., M.S., Institute of Medicine

The NAS AuditoriumCTACorg
Bill Novelli and Tom Koutsoumpas, Co-Chairs, Coalition to Transform Advanced Care call the tribe of advanced care to order. #CTAC2013Dave Foster
#CTAC2013 Summit is starting! Bill Novelli: we are here for loved ones who may not have gotten the care they deserved. via @KnowYourWishesRTI_Innovation
Dr. Judy Salerno presenting keynote address: #CTAC2013Jennifer Marsh
Judy Salerno of @theIOM at #CTAC2013 re: advanced illness – "Stories tell us that people can change." and, channeling BO, "We must act."RTI_Innovation
Judith Salerno: Americans with advanced illness will receive comprehensive, high quality, person & family centered care. Join us #Ctac2013Lauren Jodi Van Scoy
I agree with Judy that personal stories inform and engage and are essential to transforming #advancedcare What’s the best way? #CTAC2013Dave Foster
Panel: Care Journey: Personal Reflections on Advanced Care going on now in the auditorium! #CTAC2013C-TAC

9:30AM-11:30AM       Care Journey:Personal Reflections on Advanced Care

Moderators

Richard Address, Congregation M’KorShalom

Tyrone Pitts, Progressive NationalBaptist Convention

 

Panelists

Amanda Bennett, Bloomberg News

Nancy Brown, American Heart Association

Suzanne Mintz, Caregiver Action Network

SusanReinhard, AARP
Don Schumacher, National Hospice and PalliativeCare Organization (NHPCO)

 

Closing Remarks

Brad Stuart, M.D., Sutter Care at Home

Three Powerful Storiesctacorg
A Biker’s Heartctacorg
So honored and touched to watch A Biker’s Heart run on the big screen. To view the video, visit http://www.knowyourwishes.com. #Ctac2013Lauren Jodi Van Scoy
RT @rfberry: "1/3 of hospice patients died within 7 days." Don Schumacher CEO @NHPCO_News #CTAC2013 Re: Waiting too long to refer to #hospiceMichelle Martini
RT @JenMarsh2: RT @Altarum: Don Schumacher on the measure of quality: “Imagine what want for yourself, and then seek to have that for everyone.” #CTAC2013renée berry
RT @hwinsider: Suzanne Mintz, "Mental illness caregivers have a much harder time, 1/3 of #familycaregivers care for more than 1" #CTAC2013CAN
Nancy brown stresses impt of advanced planning in pts w/ heart failure, but this disease is esp lacking in advanced planning.Agree #Ctac2013Lauren Jodi Van Scoy
Susan Reinhard says that the RNs she was training were not psyched to go in and teach families in home. Not part of training. #CTAC2013Dave Foster
"We need a hospice philosophy for all advance illness care where the whole family is part of the care unit." S Reinhard @AARP #CTAC2013 #hpmrenée berry
"Even in transitional care, there is still meager attention given for the family caregiver." Susan Reinhard, SVP @AARP #CTAC2013renée berry
Broader community, too! Reinhard @AARP "We need adv illness care where the whole family is part of the care unit." #CTAC2013 @agesinstituteRTI_Innovation
"Your effectiveness as professionals will be diminished if you don’t support carevigers." Susan Reinhard, SVP @AARP #CTAC2013renée berry
"It is vital that the family caregiver be a part of the health care team at all stages" @AARPpolicy Susan Reinhard #CTAC2013Rita Choula
Amanda Bennett at #CTAC2013 "Denial is nowhere near strong enough a word for what we are experiencing." #advancedillnessRTI_Innovation
After hearing Amanda Bennett speak, I simply must read her book! Amazing story and research went into this work!!! #Ctac2013Lauren Jodi Van Scoy
Rev Tyrone Pitts reminds us we are "inextricably interrelated," urges us to create a movement to transform advanced illness care #CTAC2013RTI_Innovation
#CTAC2013 what are we doing in national policy to address these issues? How can we talk about re-admissions without talking about hospice?Regina Holliday
RT @CTACorg @NHDD at #CTAC2013: inefficiencies are a huge driver of cost.Christian Sinclair
                                    Closing RemarksBrad Stuart, M.D., Sutter Care at Home

Good luck, Dr. Stuart! RT @rfberry: Next session with a story from @BradHStuart @SutterHealth #CTAC2013 (Excited #FantasticSpeaker )Sutter Health
Brad Stuart @SutterHealth: Modern medicine measures quality w/out tending to spirituality/the sense of trust essential to healing #CTAC2013Altarum Institute
"The healthcare I was trained to provide was no longer caring" @BradH Stuart #CTAC2013Jennifer Marsh
Basic human need for love and trust has a strong link to spirituality. Need to infuse into health care, especially at EOL. Stuart #CTAC2013Patricia Bomba M.D.
Looking forward to hearing @dnmendelson & colleagues discuss costs/benefits of transforming advanced care: http://ow.ly/hejYi #CTAC2013Avalere Health

11:45AM-1:00PM       Assessing the Benefits & Costs ofTransforming Care

Moderator

Mark McClellan, Brookings Institution

Panelists

Jeff Burnich, M.D., Sutter MedicalNetwork

Gail Hunt, National Alliance forCaregiving

Randall S. Krakauer, M.D., Aetna

Diane E. Meier, M.D., Center to Advance Palliative Care

Dan Mendelson, Avalere Health

Panel at #CTAC2013. Assessing the Benefits and Costs of Transforming Care http://pic.twitter.com/pgXylJEYC-TAC
Jeff Burnich w fascinating data about ways to lower costs, ICU days with advanced illness management. Eager to read the data! #Ctac2013Lauren Jodi Van Scoy
Yes! I wish there were slides “@KnowYourWishes: Jeff Burnich data about ways to lower costs, … Eager to read the data! #Ctac2013”Dave Foster
Randy Krakauer: Those in this room and else here have reinstated that there is a tremendous opportunity for impact. #CTAC2013C-TAC
Randy Krakauer on his Compassionate Care program @Aetna: There are still no beneficiary or family complaints (1/2) #CTAC2013Altarum Institute
"We decided (with this chronic illness management program) we are going to impact & define quality" Randy Krakauer @Aetna #CTAC2013renée berry
"If this had been a drug that showed 80% improvement as a key outcome, it would be a standard of care." Randy Krakauer @Aetna #CTAC2013renée berry
.@dnmendelson: We are in a world where evidence has become exceedingly important. So how do you develop compelling evidence? #CTAC2013Avalere Health
"If you’re looking for the motherload of impact on both cost & improving quality, this is it." Randy Krakauer @Aetna #CTAC2013 #hpmrenée berry
@rfberry @avalerehealth @HWinsider @KnowYourWishes @Altarum Thanks so much for sharing! #ctac2013 #compassionatecareAetna
“Using Patient Flow Data to Manage Risk, Enhance Patient Outcomes, and Improve Financial Performance” – @dnmendelson’s talk #CTAC2013Altarum Institute
"Make a case for dignity driven decision making, there is ample data. Motivate w/a quality imperative" @dnmendelson @avalerehealth #CTAC2013renée berry
Diane Meier of @CAPCpalliative: “Adding a covered benefit does not always, or even often, yield savings in some other area.” #CTAC2013Altarum Institute
We need to stop saying end of life care when talking about patients with chronic serious illness. Diane Meier was terrific at #CTAC2013 #hpmDana Lustbader MD

1:45PM-2:00PM         Remarks

Speaker

Jeff Thompson, Gundersen Health System

Jeff Thompson, MD, CEO of Gundersen Health System spoke at #CTAC2013 on Advanced Illness Care. Dr. Thompson said…http://bit.ly/VslGlFGundersen Lutheran
RT @rfberry: “A fundamental question is do we want to have a say in how we live?" Jeff Thompson, MD CEO @GundersenLuth http://goo.gl/mOZTL #CTAC2013Jack Tatar
“A fundamental question is do we want to have a say in how we live?" Jeff Thompson, MD CEO @GundersenLuth http://goo.gl/mOZTL #CTAC2013renée berry

2:00PM-3:00PM         The Washington Context: PolicyOpportunities to Improve Advanced Illness Care

Moderator

Bruce Chernof, The SCAN Foundation

 

Panelists

HannsKuttner, TheHudson Institute

Chris Jennings, Jennings Policy Strategies

SenatorBlanche Lincoln (D-AR), Alston & Bird

LenNichols, GeorgeMason University

Panel: "The Washington Context: Policy Opportunities to Improve Advanced Illness Care" with Sen. Lincoln, @LenMNichols http://pic.twitter.com/lkZtB5tfC-TAC
The distance between policy elites and the people creates an opportunity for policy entrepreneurs Hanns Kuttner #CTAC2013C-TAC
@CTACorg Sen Blanche Lincoln (D-Ark) speaks on The Washington policy opportunity for Advanced care & hospice care for her motherStephen Connor
RT @Kathy_Brandt: @CTACorg Sen Blanche Lincoln-we need to make sure people do know what is available. We need to help people plan for end of life #hpmEngage With Grace
Senator Lincoln at #CTAC2013 We have to take the issue to where we live.C-TAC
@CTACorg Len Nichols "what docs do is save us, until they can’t" we can increase expectations that there is more they can do #hospiceKathy Brandt

3:00-4:15PM               Perspectives from the U.S. Senate: Achieving High-Quality AdvancedIllness Care  for Our Seniors                                 
Moderator

Susan Dentzer, Health Affairs

PanelistsU.S. Senator Johnny Isakson (R-GA)

U.S. Senator MarkWarner (D-VA)

U.S.Senator Sheldon Whitehouse (D-RI)

@CTACorg Susan Dentzer asks, if faith community invited congress to EOL forum, would Congressmen come? #hpmKathy Brandt
@CTACorg Sen Mark Warner, "you have to involve the faith community in the drive for advanced care"Stephen Connor
We share the message but no one listens. RT @CTACorg: Chris Jennings @ #CTAC2013 better care is the cake and cost savings is the icing.Scott Brown
Three senators currently on the CTAC panel: Sen. Isakson R-GA, Sen. Warner D-VA, Sen. Whitehouse D-RI #Ctac2013Lauren Jodi Van Scoy
@CTACorg Sen Whitehouse Ctac membership is the cover we need to get this issue moved. #hpmKathy Brandt
Sen. Warner said time is ripe for action; working on advanced care bill now #CTAC2013CritCareRoundtable
Senator Isakson: you (@CTACorg) need to create a brand so that everyone (public) knows the same terms, what we are talking about. #Ctac2013Lauren Jodi Van Scoy
Sen. Isakson says education is the first step in changing the discussion on advanced care #CTAC2013.CritCareRoundtable
RT @hospice_mktg: Wise words! RT @Kathy_Brandt: @CTACorg Sen Warner build champions who were touched by #hospice/other orgs & get stories into media #CTAC20136th Annual NHDD
Sen. Warner, #CTAC2013 on care plans:You will find a much more open discussion now than you would even two years ago.MediCaring

4:15PM-4:30PM         Closing Remarks

Speaker

Leonard D. Schaeffer, University ofSouthern California

4:30PM-6:30PM         Reception

                                   Great Hall

Goodnight #CTAC2013! See you tomorrow. Get excited for Kathy Greenlee, Jennie Chin Hansen & the rest of our lineup! http://pic.twitter.com/UQWilfxrC-TAC

Day Two: January 30, 2012 –Presenting Solutions and Developing an Action Plan

8:30AM-9:00AM         Keynote Address
Speaker

Kathy Greenlee, Assistant Secretary for Aging, U.S. Department ofHealth & Human Services

Kathy Greenlee at #CTAC2013 – There is more we can do and should do to support families and their caregivers.C-TAC
Kathy Greenlee, KeynoteCTACorg
Kathy Greenlee of HHS: talking about end of life can be complicated, but it can also be very simple. #Ctac2013 @engagewithgraceEngage With Grace
Kathy Greenlee – We need to figure out how to break down barriers to advance illness care #CTAC2013C-TAC
Great inspirational speech by Kathy Greenlee regarding working together to transform care. #CTAC2013Jennifer Marsh

9:00AM-10:00AM       Panel I: Empowering the Public to MakeInformed Decisions and Plans

Moderator

Alexandra Drane, Eliza Corporation


Opening SpeakerKent Wilson,Honoring Choices Minnesota

 

Panelists

Amy Berman, The John A. HartfordFoundation

PegChemberlin,National Council of Churches

HarveyFreishtat,Institute for Healthcare Improvement/The Conversation Project

Bill Hanley, Twin Cities Public Television(TPT)
Lisa Shufro, TEDMED

Empowering the Public PanelCTACorg
Inspiring videos from Honoring Choices Minnesota showcase real people, real stories. #dareyounottocry @engagewithgraceEngage With Grace
Mario’s Storyctacorg
Empowering the Public PanelCTACorg
Empowering the Public PanelCTACorg
C-TAC offers a safe harbor for those working to improve the (sometimes touchy) topic of advanced care @adrane http://www.thectac.orgEngage With Grace
RT @KnowYourWishes: @adrane We need a brand, unified language, emphasizing how you want to live, resources, role of the caregiver… #Ctac2013Jack Tatar
Our friend @adrane of @engagewithgrace up on stage for the public empowerment panel.Excited!!! #Ctac2013Lauren Jodi Van Scoy
@adrane We need to ride the tidal wave (of this momentum) #Ctac2013Lauren Jodi Van Scoy
@CTACorg @adrane we are poised to create a great conversation on advanced illness, EOL. #hpmKathy Brandt
RT @HWinsider: I think @adrane just coined a new gang sign for #hpm. "7:20" means we all want to trust being connected in the same time. #CTAC2013Lauren Jodi Van Scoy
Empowering the Public PanelCTACorg
RT @wonkinakilt: Peg Chamberlin: Fear of "dying from" is a spiritual issue; fear of "living with" is a community issue. #CTAC2013RTI_Innovation
@CTACorg @NotesOnNursing 75% of people can’t make some or all decisions at EOL #speak4me http://www.caringinfo.org/speak4me #hpmKathy Brandt
Empowering the Public PanelCTACorg
MT "@rossswhite: Amy Berman: "Patient is a bad word. I am not a patient; I am a person" #CTAC2013 #bioethics"C-TAC
@CTACorg @convoproject looking forward to having Ellen Goodman at #MLC13 http://www.nhpco.org/mlc2013 #hospice #hpmKathy Brandt
RT @Kathy_Brandt: @CTACorg Harvey Freishtat @convoproject gap betweens what people want and what they get needs to be filled with conversation #hpmC-TAC
Empowering the Public PanelCTACorg

10:00AM-11:00AM    Panel II: Working Together:Innovations in Inter-Professional Training

Moderators

David E. Longnecker, M.D., Association of AmericanMedical Colleges
Cynda Rushton, PhD, RN, FAAN, Johns HopkinsUniversity

 

Panelists

Patricia A. Grady, PhD, RN, FAAN, NationalInstitute of Nursing Research

Bud Hammes, Gundersen Health System

Richard Payne, Duke Institute for Care at theEnd of Life

Bob Wolf, Healthcare Chaplaincy      

Panel: "Working Together: Innovations in Inter-Professional Training." #CTAC2013 http://pic.twitter.com/Efykzzi4C-TAC
Supporting the Team PanelCTACorg
@CTACorg NINR is working on advanced care – EOL is being worked on thru out the government! #hpmKathy Brandt
Supporting the Team PanelCTACorg
Supporting the Team PanelCTACorg
People with advanced illness suffer because our current system is fragmented -Bud Hammes #CTAC2013Jennifer Marsh
Supporting the Team PanelCTACorg
.Bud Hammes of @gundersenluth patients want a mixture of access to advanced care while keeping all the other services too #CTAC2013Dave Foster
@CTACorg Rich Payne we have to practice the God Father principle-try to see the world as other people see the world #hpmKathy Brandt
Supporting the Team PanelCTACorg
@CTACorg Rich Payne people want docs to offer them choices but more than 50% want doctor to make the healthcare decisions #hpmKathy Brandt
Supporting the Team PanelCTACorg
Curious to hear how Wolf thinks chaplaincy care should deal with the "nones," especially those entirely without faith. We die too! #CTAC2013Joe Colucci

11:15AM-12:15PM     Panel III: Identifying and Replicating BestPractices in Clinical and                                    CommunityModels

Moderator

Tom Smith, Johns Hopkins University

                       

Panelists

Eric Anderson, Allina Health System

Bill Borne,Amedisys

Malene Davis, Hospice Innovations Group

Dan Johnson,Kaiser Permanente

Panel: "Identifying and Replicating Best Practices in Clinical and Community Models" #CTAC2013 http://pic.twitter.com/2ezbm1ErC-TAC
Clinical Models panel talks #barriers and #opportunities to increase quality of care #CTAC2013C-TAC
Clinical and Community Models PanelCTACorg
@CTACorg learning about Alina Heath’s LifeCourse care guide model. #hpmKathy Brandt
@CTACorg Dan Johnson invest in training, imbed speciality support into high risk services #hpmKathy Brandt
Clinical and Community Models PanelCTACorg
@CTACorg Bill Borne the incentive to change is the incentive. Incentive needs to be the proper reimbursement. Away from fee for serviceKathy Brandt
Clinical and Community Models PanelCTACorg
@CTACorg Malene Davis presents Innovations Group and says community should demand hospice done rightStephen Connor
@CTACorg Malene Davis 8 key metrics-what matters most. Collect and share data with staff. #hpmKathy Brandt
Clinical and Community Models PanelCTACorg
@CTACorg Tom Smith wants performance feedback from hospice providers, how am I doing on things like LOSStephen Connor
Clinical and Community Models PanelCTACorg

12:15PM-1:15PM      Panel IV: Empowering Employers asPart of the Solution

                                    Auditorium

ModeratorBrent Pawlecki, The Goodyear Tire and Rubber Company

 

Panelists

Ann Richardson Berkey, McKesson Corp.
Kathy Brandt, National Hospice and Palliative Care Organization (NHPCO)
Pam Kalen, National Business Group on Health
Neil Trautwein,National Retail Federation

Jack Watters, Pfizer

 

Panel: Empowering Employers as Part of the Solution #CTAC2013 http://pic.twitter.com/OtJi1PS9C-TAC
Brent Pawlecki of the @CTACorg Employer Comm. How does this issue affect you and the employees around you? #CTAC2013 http://pic.twitter.com/RIBrO17cC-TAC
Brent Pawlecki from @Goodyear talking about why employers need to care about advanced illness programs #CTAC2013Jennifer Marsh
Empowering Employers PanelCTACorg
I wish more employers thought like Pawlecki does and incorporate aging, caregiving, eol and grief into wellness programs #CTAC2013Jennifer Marsh
Pawlecki: Grief is an employer issue, too. Makes sense to provide end-of-life resources to keep employees prepared & supported. #CTAC2013Joe Colucci
Very impressed with the #CTAC2013 presentation by Robert Pawlecki, MD, Chief Health Officer at Goodyear http://goo.gl/UlF1crenée berry
Empowering Employers PanelCTACorg
@TrautweinNeil speaking on retailers and the role of large employers in advanced care at #CTAC2013 @NRFnewsC-TAC
Empowering Employers PanelCTACorg
Jack Watters (Pfizer) encourages all caregivers in the workplace to “come out” – no more shame.Kudos to the ReACT project #TheUnmentionablesEliza Corporation
Jack Watters: Caregivers in the workplace need to come out. Can only build support by being visible. #CTAC2013Joe Colucci
Jack Watters thank you for sharing your personal story with #CTAC2013! #ArkansasAccent @pfizer_newsC-TAC
RT @CTACorg: Presenteeism: Being at work, but not being totally there #CTAC2013Jennifer Marsh
Empowering Employers PanelCTACorg
@Kathy_Brandt speaking on initiatives to engage consumers on workplace issues. @NHPCO_news Employer Guide. #CTAC2013C-TAC
Empowering Employers PanelCTACorg
RT @Kathy_Brandt: @CTACorg National Healthcare Decisions Day is April 16 every year http://www.nhdd.org #speak4me #hpm http://www.caringinfo.org/speak4merenée berry
Great question about tips for employers initiating advance care planning discussions by Judy Citko, JD #CTAC2013renée berry

1:45PM-3:00PM         Concurrent Breakout Sessions

Enjoy your breakout sessions everyone! See you at 3pm in the auditorium to close the day with Jennie Chin Hansen. #CTAC2013C-TAC
Jennie Chin Hansen of @AmerGeriatrics summing up a great two days! #CTAC2013 http://pic.twitter.com/YBG6xJdiC-TAC
Tom Koutsoumpas and Bill Novello saying thank you to close #CTAC2013 http://pic.twitter.com/q2MlQuhnC-TAC
@CTACorg @CarolynMcC @NotesOnNursing @Pallimed @rfberry @JenMarsh2 @adrane finished painting"It is7:20 here"#ctac2013 http://www.flickr.com/photos/45128746@N04/8436580346/in/photostreamRegina Holliday
For my #FF, I have to honor @CTACorg for their amazing Nat’l Summit! View the transcript at #CTAC2013Lauren Jodi Van Scoy
RT @rfberry: 1,817,699 impressions generated on Twitter for @CTACorg’s 2013 National Summit on Advanced Illness http://goo.gl/ns8Qb #CTAC2013S. Mikan, PhD, RN
Honoring Choices MN featured at Nat. Summit on Advance Illness Care Conference http://ow.ly/hrHjcTCMS Minnesota

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